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Have You Heard Of This

My sister was diagnosed with this condition has anyone heard of it? Non compaction left Ventrical.

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 ---Carla5754 on 8/6/06
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NV Barbara, I'm not positive about that, I'm in school to be a respiratory therapist right now and we have to pass each class and each final with a C or better. Either way, I'd rather have an A doctor than a C doctor. :-)
---Todd1 on 5/28/08

Here in Britan her Dr refuses to do anything with her, her breathing is erratic, her Bloodpressure is unstable and dangerously high, she has been given tablets and has had water and blood samlpes, her eyes are constantly red of late, she cannot do normal house work, walk very far or climb the stairs or she is out of breath. Information given to her from her GP was it is nothing to worry about, We looked it up on the net and is sound fatal to us!
---Carla5754 on 5/28/08

My mum (71) has just been diagnosed as a result of a sonar scan following a heart attack. I am a asymptomatic twin (51) & we have a younger brother (47). One bro is a oparamedic the other a biochemist. Reading the "literature" gives conflicting stories, but her consultant is going to write to us regarding being screened for the disease. I also have a 22 y/o son & 19 y/o daughter. Not sure I want to know the results!!!
---Malcolm_Simpson on 8/10/07

By ALL means seek another Dr.! This could be life threatening! Get a referrel from General Practitioner to a heart specialist. In the meantime get as much info as you can so you can be somewhat informed about the ailment.

Do you know what they call someone who graduated from Med. School with a "D" average?.........Doctor!
Not all are equal!
---NVBarbara on 3/25/07

Non-compaction of the left ventricle is a rare congenital cardiomyopathy characterised by a loosened spongy myocardium. The disorder may be associated with facial dysmorphism and familial recurrence and is caused by intrauterine arrest of compaction of the loose interwoven meshwork. Prompt recognition of the disease is mandatory because of its high mortality and morbidity. Heart failure, thromboembolic events, and ventricular arrhythmias all have been reported.
---notlaw99 on 3/25/07

I belive it is something to do with heart.
---Betty on 8/26/06

I found over 42 references on PUBMED search engine using the following string:


Then you use logical AND = + and NOT = - OR = | to further qualify the search set using additional terms.

That how you do structured data queries on the medical search engines. The number of ( and ) must be equal, logical operators go before the terms. In PUBMED if have to spell the out as all caps AND, NOT, OR. I can't pass you results so you have do do your own queries.
---notlaw99 on 8/10/06

I tried to look up the condition with the ref you gave but found many sites,one case study but could not really make much of the others can you be a little more specific. Thank you anyway becauseI could only find 4 websites or so with infomation on the condition but no feed back or forum for disscussion.
---Carla5754 on 8/9/06

Carla5754 - All I did was look up the condition under Google and gave you a partial response as their were several graphics and descriptions. For more clinical data do a structured logical operator searchs on PUB MED. You will be able to read abstracts but the actual publications require subscriptions. I will pray pray for your friend who has the condition.
---notlaw99 on 8/8/06

Carla - I would urge you to get her to another doctor for another opinion as soon as you can. For a doctor to say it's nothing to worry about with symptoms like that I would bypass that doctor. They are not all good doctors --- pray and ask the Lord to lead you to a good doctor. Bless you.
---Helen_5378 on 8/7/06

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